NHF12-012

NYLI: Who Are We? What Do We Do?

Speakers: Samantha Jankins; Alexandra Johnson; Sean Jeffrey

The National Youth Leadership Institute (NYLI) is a leadership training program for a diverse group of young women and men affected by bleeding and clotting disorders, ages 18-25. NYLI was created in 2004 to foster the development of leaders and help NHF chapters/associations across the country build strong youth programs. During this session you have the opportunity to meet a few members from NYLI. Learn about different projects they have been involved in over the past year and the application process. Members will highlight their experiences at NHF events, including Washington Days, Youth Fit, and serving as representatives on the NHF Board of Directors, Diversity Outreach Working Group, Steps for Living Task Force, and Annual Meeting Planning Committee.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-105

Weighty Matters: Overweight with a Bleeding Disorder? Why It Matters and What We Can Do About It

Speakers: Ruth Mulvany, DPT, MS, PT

This session reviews current research on prevalence and impact of overweight conditions in patients with bleeding disorders. We analyze the biomechanical stress of weight loading on joints and multiple body systems, and will review how being overweight adversely affects people with bleeding disorders even more than the average population. Examples of calculations for biomechanical stress are given. Research on weight-loss strategies will be reviewed and participants will develop at least one strategy for counseling/patient education, safe exercise for fitness, wellness and weight loss, motivation and promotion of self-management.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-009

Ask the Experts: Hormone Therapy Across Women’s Lifespan

Speakers: Lisa Perriera, MD, MPH; Beth McDonald, RN; Moderator: Danielle Schwager

From birth control pills to estrogen replacement therapy, girls and women with bleeding disorders are often prescribed hormone therapy to address their bleeding issues. A panel of healthcare providers explain all available therapies and respond to audience questions. We discuss puberty and hormone therapy/birth control, talking to your daughters about puberty and hormone therapy, and perimenopause and menopause replacement therapy. Learn about the variety of hormone therapies and their pros and cons, and suggestions for developing a plan for your daughter with a bleeding disorder in preparation for puberty.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-220

Wish Upon a STAR: Discussion of Ankle Replacement Surgery

Speakers: Paul S. Cooper, MD; Moderator: Carolyn Francis, RN, CNP, MS

Learn about the Scandinavian Total Ankle Replacement (STAR™) from the Medstar Georgetown University Hospital's leading foot and ankle surgeon, Paul S. Cooper, MD. Dr. Cooper discusses ankle anatomy; what makes the bleeding disorders patient an ideal candidate for the STAR; the advantage of ankle replacement over an ankle fusion; and preoperative, post-operative and rehabilitative care. He talks about how bleeding disorders patients are doing and will be expected to do in the future. Having performed more than 1,000 ankle replacements, Dr. Cooper shares his experience, challenges and hopes for the future of ankle replacement therapy.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-000

Full Set Audio

Each session on a separate CD (includes free binders); or all sessions in mp3 format on free USB (playable on any computer, iPod, IPad or other listening electronic device. CDs and USBs delivered via Priority US Mail. 15% shipping and handling fees will be applied upon checkout.

Audio CDs: 73

Audio CD

$495.00

$495.00

Subtotal

$543.00