NHF12-105

Weighty Matters: Overweight with a Bleeding Disorder? Why It Matters and What We Can Do About It

Speakers: Ruth Mulvany, DPT, MS, PT

This session reviews current research on prevalence and impact of overweight conditions in patients with bleeding disorders. We analyze the biomechanical stress of weight loading on joints and multiple body systems, and will review how being overweight adversely affects people with bleeding disorders even more than the average population. Examples of calculations for biomechanical stress are given. Research on weight-loss strategies will be reviewed and participants will develop at least one strategy for counseling/patient education, safe exercise for fitness, wellness and weight loss, motivation and promotion of self-management.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-012

NYLI: Who Are We? What Do We Do?

Speakers: Samantha Jankins; Alexandra Johnson; Sean Jeffrey

The National Youth Leadership Institute (NYLI) is a leadership training program for a diverse group of young women and men affected by bleeding and clotting disorders, ages 18-25. NYLI was created in 2004 to foster the development of leaders and help NHF chapters/associations across the country build strong youth programs. During this session you have the opportunity to meet a few members from NYLI. Learn about different projects they have been involved in over the past year and the application process. Members will highlight their experiences at NHF events, including Washington Days, Youth Fit, and serving as representatives on the NHF Board of Directors, Diversity Outreach Working Group, Steps for Living Task Force, and Annual Meeting Planning Committee.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-220

Wish Upon a STAR: Discussion of Ankle Replacement Surgery

Speakers: Paul S. Cooper, MD; Moderator: Carolyn Francis, RN, CNP, MS

Learn about the Scandinavian Total Ankle Replacement (STAR™) from the Medstar Georgetown University Hospital's leading foot and ankle surgeon, Paul S. Cooper, MD. Dr. Cooper discusses ankle anatomy; what makes the bleeding disorders patient an ideal candidate for the STAR; the advantage of ankle replacement over an ankle fusion; and preoperative, post-operative and rehabilitative care. He talks about how bleeding disorders patients are doing and will be expected to do in the future. Having performed more than 1,000 ankle replacements, Dr. Cooper shares his experience, challenges and hopes for the future of ankle replacement therapy.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-121

Insurance and Advocacy

Speakers: Johanna Gray, MPA; Ellen Riker; Michelle Rice

NHF’s DC consultants provide an update on the political climate post election, its potential impact on health reform implementation and what it means to you as a consumer. Learn how to use the Personal Health Insurance Toolkit to assist you in evaluating your health plan options.

Audio CDs: 2

Audio CD

$24.00

$24.00

Subtotal

$60.00