NHF12-115

Aging & Hemophilia: Embracing Your Inner Geezer

This session focuses on health issues that affect older hemophilia patients and the evolving nature of comprehensive care. We discuss cardiovascular disease; rheumatological diseases such as gout, arthritis and bone disease; cancer screenings; and orthopedic referrals. Learn the symptoms of age-associated health conditions and how you can coordinate with your HTC and other providers to get the resources you need.

MP3

$10.00

$10.00

NHF12-205

I Can Have a Bleeding Disorder and Live a Big Life

Speakers: Diane Standish, LSW; Randall Curtis, MBA; Lilliam Bervis; Eric Burgeson; Danielle Schwager

There are many different perspectives on living with a chronic illness and many reasons to be optimistic. During this session we focus on finding balance in your life, and finding ways to develop your natural skills and abilities. We look at healthy ways to integrate your bleeding disorder with your identity and hear from others who have used their skills in creative, fulfilling ways. Your bleeding disorder is only one part of who you are. Learn how to develop your whole person and tap into your many talents.

MP3

$10.00

$10.00

NHF12-119

Upper Extremity Orthopedics and Interventions

Speakers: Mauricio Silva, MD

During this session we focus on the evaluation of hemophilic arthropathy of the elbow, including the general signs and symptoms, the physical findings, the evaluation tools and the medical and surgical treatment options. Special emphasis is placed on the evaluation of the available imaging tools (radiographs, ultrasound, CT scan, MRI) and on the available surgical options for advanced hemophilic arthropathy of the elbow. Nonsurgical alternatives are discussed.

MP3

$10.00

$10.00

NHF12-208

The Social Work Intervention in Pain Management

Speakers: Christi Humphrey, LCSW; Moderator: Cathy Hulbert, LCSW

During the session we focus on the role of the social worker in pain management of people with hemophilia. Program participants review research and literature findings on cognitive therapy and mindfulness-based stress reduction (MBSR) and their use as direct interventions with clients in pain. Experience second hand MBSR techniques and tools, and how to expand clinical skill sets for treatment of pain.

MP3

$10.00

$10.00

NHF12-009

Ask the Experts: Hormone Therapy Across Women’s Lifespan

Speakers: Lisa Perriera, MD, MPH; Beth McDonald, RN; Moderator: Danielle Schwager

From birth control pills to estrogen replacement therapy, girls and women with bleeding disorders are often prescribed hormone therapy to address their bleeding issues. A panel of healthcare providers explain all available therapies and respond to audience questions. We discuss puberty and hormone therapy/birth control, talking to your daughters about puberty and hormone therapy, and perimenopause and menopause replacement therapy. Learn about the variety of hormone therapies and their pros and cons, and suggestions for developing a plan for your daughter with a bleeding disorder in preparation for puberty.

MP3

$10.00

$10.00

NHF12-222

Camp Nursing: Heigh-Ho, Heigh-Ho, It’s Off to Camp We Go

Speakers: Jennifer Meldau, MSRN, CPNP; Madeline Cantini, BSN, RN, CCRC; Jim Munn, RN, MS; Moderator: Ellen White, RN, MSN

This session focuses on the role of the HTC nurse in the camp setting. After a brief discussion of the history and types of camps offered for those with bleeding disorders, the speakers focus on the following: health center guidelines developed for camps serving those with bleeding disorders; ways to address campers' other co-morbidities besides their bleeding diatheses; and the benefits to both the HTC nurse and the camper in this type of setting. We also discuss the importance of self-infusion teaching and ways to accomplish this at camp, the importance of teaching within the camp setting, how other health-related topics that support the care of children with bleeding disorders can be incorporated at camp, and ways to make the learning experience fun.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-214

Art or Science: Musculoskeletal Management of Hemophilia for Physical Therapists

Speakers: Alice Anderson, PT, DPT, PCS; Moderator: Eileen San Juan, MS, PT

Art or Science: You are the PT. You know anatomy and kinesiology. You know the basic pathophysiology of hemophilia. But what recommendations will you provide for the person with a bleeding disorder who is sitting in front of you? RICE? Don’t participate in collision sports? This session focuses on what we know, what we think we know, and what we hope we know about an evidence-based approach to the musculoskeletal management of persons with bleeding disorders.

MP3

$10.00

$10.00

NHF12-117

Do I Have to Be on the Team? Benefits and Challenges of Sports Participation

Speakers: Jeffrey Kallberg, PT

This session is geared toward families of children with bleeding disorders and teens who have either chosen to participate in sports or who have chosen a different interest, such as music or art. We discuss the physical pros and cons of sports and the psychological pros and cons of belonging to a team, including choosing not to participate.

MP3

$10.00

$10.00

NHF12-216

Unexpected Highs: A New World in Street Drugs

Speakers: Paula Lipton, LCSW; Lance Rice; Moderator: Colleen Joiner, LMSW

This session focuses on education and information about illicit and “street” drugs that are commonly abused. We discuss the different names, types and components of “street” drugs and illicit drugs. Drug side effects and possible symptoms or warning signs of abuse are elaborated on. Learn about how common household items and normally prescribed drugs are being abused by both youth and adults today.

MP3

$10.00

$10.00

NHF12-218

Research Presentations from NHF-Baxter Clinical Fellows

MP3

$10.00

$10.00

Subtotal

$102.00