NHF12-121

Insurance and Advocacy

Speakers: Johanna Gray, MPA; Ellen Riker; Michelle Rice

NHF’s DC consultants provide an update on the political climate post election, its potential impact on health reform implementation and what it means to you as a consumer. Learn how to use the Personal Health Insurance Toolkit to assist you in evaluating your health plan options.

Audio CDs: 2

Audio CD

$24.00

$24.00

NHF12-205

I Can Have a Bleeding Disorder and Live a Big Life

Speakers: Diane Standish, LSW; Randall Curtis, MBA; Lilliam Bervis; Eric Burgeson; Danielle Schwager

There are many different perspectives on living with a chronic illness and many reasons to be optimistic. During this session we focus on finding balance in your life, and finding ways to develop your natural skills and abilities. We look at healthy ways to integrate your bleeding disorder with your identity and hear from others who have used their skills in creative, fulfilling ways. Your bleeding disorder is only one part of who you are. Learn how to develop your whole person and tap into your many talents.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-115

Aging & Hemophilia: Embracing Your Inner Geezer

This session focuses on health issues that affect older hemophilia patients and the evolving nature of comprehensive care. We discuss cardiovascular disease; rheumatological diseases such as gout, arthritis and bone disease; cancer screenings; and orthopedic referrals. Learn the symptoms of age-associated health conditions and how you can coordinate with your HTC and other providers to get the resources you need.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-218

Research Presentations from NHF-Baxter Clinical Fellows

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-101

Plenary on Inhibitors

Speakers: Chris Guelcher, MS, RNCS, PNP

Audio CDs: 2

Audio CD

$24.00

$24.00

NHF12-208

The Social Work Intervention in Pain Management

Speakers: Christi Humphrey, LCSW; Moderator: Cathy Hulbert, LCSW

During the session we focus on the role of the social worker in pain management of people with hemophilia. Program participants review research and literature findings on cognitive therapy and mindfulness-based stress reduction (MBSR) and their use as direct interventions with clients in pain. Experience second hand MBSR techniques and tools, and how to expand clinical skill sets for treatment of pain.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-212

A Taste of PEP: Parents Empowering Parents

Speakers: Jennifer Foster-Fausett, BSN, RN; Alex Lowe; Danna Merritt, MSW, LMSW

Come for a taste of PEP. This special session is designed to strengthen parents who have a child with a bleeding disorder. While addressing the physical and emotional issues related to raising a child with an inherited, complicated bleeding condition, participants strengthen their behavioral management and communication skills. The session is taught by a trained PEP team including a parent peer, nurse and social worker.

MP3

$10.00

$10.00

NHF12-119

Upper Extremity Orthopedics and Interventions

Speakers: Mauricio Silva, MD

During this session we focus on the evaluation of hemophilic arthropathy of the elbow, including the general signs and symptoms, the physical findings, the evaluation tools and the medical and surgical treatment options. Special emphasis is placed on the evaluation of the available imaging tools (radiographs, ultrasound, CT scan, MRI) and on the available surgical options for advanced hemophilic arthropathy of the elbow. Nonsurgical alternatives are discussed.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-216

Unexpected Highs: A New World in Street Drugs

Speakers: Paula Lipton, LCSW; Lance Rice; Moderator: Colleen Joiner, LMSW

This session focuses on education and information about illicit and “street” drugs that are commonly abused. We discuss the different names, types and components of “street” drugs and illicit drugs. Drug side effects and possible symptoms or warning signs of abuse are elaborated on. Learn about how common household items and normally prescribed drugs are being abused by both youth and adults today.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-009

Ask the Experts: Hormone Therapy Across Women’s Lifespan

Speakers: Lisa Perriera, MD, MPH; Beth McDonald, RN; Moderator: Danielle Schwager

From birth control pills to estrogen replacement therapy, girls and women with bleeding disorders are often prescribed hormone therapy to address their bleeding issues. A panel of healthcare providers explain all available therapies and respond to audience questions. We discuss puberty and hormone therapy/birth control, talking to your daughters about puberty and hormone therapy, and perimenopause and menopause replacement therapy. Learn about the variety of hormone therapies and their pros and cons, and suggestions for developing a plan for your daughter with a bleeding disorder in preparation for puberty.

Audio CDs: 1

Audio CD

$12.00

$12.00

Subtotal

$142.00