| | | NHF12-124 | | Please Tell Me Who You Are: Identifying Different Roles in the Hospital Setting Speakers: Kristen Jaworski, RN, BSN, CCRC In this session, we focus on the variety of healthcare providers families with a bleeding disorder will encounter and give effective methods on how to best communicate with them. We define “need to know” information and role play an exercise on how to effectively advocate for your care when dealing with different providers. Leave the session with a list of phrases that will aid in conversations with healthcare providers and a basic template of “need to know” information. Best of all, you will have increased confidence in working with your healthcare team. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-111 | | Es Un Asunto de Familia: Trabajando Juntos para crear un Ambiente Positivo de Familia Speakers: Dave Robinson, PhD; Guillermo Campillo; Moderator: Marisela Trujillo, LMSW En esta sesión, nos concentraremos en cómo la cultura afecta a las familias con una enfermedad crónica y cómo superar el estigma de un trastorno de hemorrágico para que no afecte a su hijo. Discutir cómo las parejas pueden trabajar juntos como un equipo y involucrar a la familia extendida como ayudantes. Al final de la sesión aprenderá técnicas sobre cómo trabajar más eficazmente juntos como una familia para hacer frente a los estresores de un trastorno de sangrado. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-212 | | A Taste of PEP: Parents Empowering Parents Speakers: Jennifer Foster-Fausett, BSN, RN; Alex Lowe; Danna Merritt, MSW, LMSW Come for a taste of PEP. This special session is designed to strengthen parents who have a child with a bleeding disorder. While addressing the physical and emotional issues related to raising a child with an inherited, complicated bleeding condition, participants strengthen their behavioral management and communication skills. The session is taught by a trained PEP team including a parent peer, nurse and social worker. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
