NHF12-213

Mirror, Mirror on the Wall: What Is a Carrier After All? Caring for Carrier

Speakers: Jody L. Kujovich, MD; Joann Deutsche, FNP-BC; Moderator: Kim Schafer, RN, BSN

This session reviews how FVIII and FIX carriers are identified, and explores the latest information on related bleeding manifestations. The importance of identifying and managing anemia related to blood loss will be included. Additionally, the effects of aging and related factors on FVIII levels, including the importance of FVIII’s role in thrombosis, is presented.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-002

Ethical Social Work Practice: What Every Social Worker Needs to Know

Speakers: Jacob D. Stone, ACSW; Moderator: Nancy Hatcher, MSW, LCSW

This seminar focuses on developing practical ethical problem-solving skills for social workers who treat patients with bleeding disorders and their families. Hear about important components of ethical competence, the use of the NASW Code of Ethics, The Ethical Principles Screen, and how to apply an algorithm for resolving ethical dilemmas. We will also discuss the ways that personal values, agency values and the values of the profession intersect in ethical discernment. Lastly, we examine and discuss several case studies that present ethical dilemmas relating to bleeding disorders.

Audio CDs: 2

Audio CD

$24.00

$24.00

NHF12-111

Es Un Asunto de Familia: Trabajando Juntos para crear un Ambiente Positivo de Familia

Speakers: Dave Robinson, PhD; Guillermo Campillo; Moderator: Marisela Trujillo, LMSW

En esta sesión, nos concentraremos en cómo la cultura afecta a las familias con una enfermedad crónica y cómo superar el estigma de un trastorno de hemorrágico para que no afecte a su hijo. Discutir cómo las parejas pueden trabajar juntos como un equipo y involucrar a la familia extendida como ayudantes. Al final de la sesión aprenderá técnicas sobre cómo trabajar más eficazmente juntos como una familia para hacer frente a los estresores de un trastorno de sangrado.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-207

Consequences of Blood in the Joint: Science to Clinical Practice

Speakers: Angela Forsyth, PT, DPT

Prevention of joint bleeding to protect structures such as the synovial membrane, cartilage and bone from detrimental changes is optimal, but not entirely feasible at this time. Therefore, we frequently must rely on medical and adjunct treatment administered at the time of bleeding to minimize the negative effects of blood in the joint. Advances in treatment that healthcare providers are able to offer people with hemophilia begin with basic science. In this session we discuss multiple concepts taken from scientific research that may influence future clinical practice and our ability to affect inflammation, wound healing, synovitis, cartilage and bone, and minimizing the negative effects of blood in the joint.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-000

Full Set Audio

Each session on a separate CD (includes free binders); or all sessions in mp3 format on free USB (playable on any computer, iPod, IPad or other listening electronic device. CDs and USBs delivered via Priority US Mail. 15% shipping and handling fees will be applied upon checkout.

USB Stick

$395.00

$395.00

NHF12-007

Liver Disease Interventions and Hepatitis C Updates

This session focuses on stage 4 liver disease (cirrhosis), coordinating liver care with your hemophilia treatment center and the status of new drugs for hepatitis C. We discuss management of complications of cirrhosis, evaluation of orthotopic liver transplantation in a patient with hemophilia and late-breaking hepatitis C therapies. Learn how you can be your own self-advocate when it comes to care, and what is in the pipeline for the future.

MP3

$10.00

$10.00

NHF12-005

Hey, What About Me? Raising Siblings in a Family Affected by Chronic Illness

Speakers: Dave Robinson, PhD

Hear about strategies to create a secure family environment, despite living with a chronic illness. Learn how to involve other children as part of the treatment team, how to help children understand their sibling’s bleeding disorder and the importance of spending valuable time with each member of the family. Hear how parents can maintain a healthy connection. Learn the strategies to create an environment where all family members can flourish.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-011

It’s a Guy Thing, Too: Men with von Willebrand Disease

Speakers: Sue Geraghty, RN, MBA; Erin Stang, LCSW

Living with von Willebrand disease (VWD) can be very challenging. During this session, we discuss significant quality of life issues faced by men with VWD. We discuss potential challenges that men with VWD face from birth to senior years.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-125

I’m More than Just a Caregiver

Speakers: Diane Standish, LSW; Robin Bratton Bias; Devi Tejiram; Dawn Rotellini

As a caregiver, do you ever experience burnout or loss of identity? During this session we focus on caregiver identity, how relationships are affected by the caregiver and the importance of maintaining balance in multiple roles. We look at research findings about caregiver identity and hear anecdotal experiences from our panelists. You learn ways to monitor caregiver burnout, and get suggestions and tips on maintaining balance and nourishing healthy relationships.

MP3

$10.00

$10.00

NHF12-209

Addressing Therapeutic Gaps in Rare Bleeding Disorders

MP3

$10.00

$10.00

Subtotal

$509.00