| | | NHF12-219 | | Creative SW Programming Speakers: Peg Geary, MA, MBA, MPH, LCSW, CCM; Elissa Kraus, MS, CGC; Don Molter, MEd; David Rushlow, LMSW; Moderators: Peg Geary, MA, MBA, MPH, LCSW, CCM Understanding Hemophilia Genetics: How Can We Help? Social Workers are given an introduction to basic hemophilia genetics, including pattern of inheritance, risk determination, and molecular testing and analysis. Using case scenarios we discuss the implications of DNA testing on the patient and family, and the complex ethical issues surrounding the disclosure of results. We explore the psychosocial dynamics of the burden and consequences of genetic knowledge. Participants identify and explore ways to assist patients and families cope with the all-too-common reactions of guilt, shame and blame —— Career Counseling for Adolescence: During this session we focus on the role and importance of career counselors within the bleeding disorder community. We discuss advocacy skills for parents and students, the differences between Healthcare Plans, IEPs and Section 504 plans and when each plan should be appropriately used. Learn about the importance of early career testing, scholarship searches, and school/community involvement activities. —— Utilizing Telemedicine in Rural Communities: This session focuses on implementing a telemedicine program at your HTC. We discuss funding, the protocols and technology necessary to run such a program. Learn how this innovative technology can improve access to healthcare and quality of care for the rural patient population. You also learn how to assess client readiness and delivery of social work intervention techniques using telemedicine as a therapy tool. | | MP3 | | $20.00 | | $20.00 | |
| | | NHF12-007 | | Liver Disease Interventions and Hepatitis C Updates This session focuses on stage 4 liver disease (cirrhosis), coordinating liver care with your hemophilia treatment center and the status of new drugs for hepatitis C. We discuss management of complications of cirrhosis, evaluation of orthotopic liver transplantation in a patient with hemophilia and late-breaking hepatitis C therapies. Learn how you can be your own self-advocate when it comes to care, and what is in the pipeline for the future. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-008 | | Preguntas Para Los Expertos En Español Speakers: Irmel A. Ayala, MD Únase a nosotros para esta sesión donde analizaremos la definición médica de hemofilia y la enfermedad de von Willebrand, el manejo de los trastornos y un repaso general de los medicamentos y otras terapias para el tratamiento y la prevención de episodios de sangrado. Habrá tiempo suficiente para preguntas y respuestas. | | MP3 | | $10.00 | | $10.00 | |
| | | NHF12-205 | | I Can Have a Bleeding Disorder and Live a Big Life Speakers: Diane Standish, LSW; Randall Curtis, MBA; Lilliam Bervis; Eric Burgeson; Danielle Schwager There are many different perspectives on living with a chronic illness and many reasons to be optimistic. During this session we focus on finding balance in your life, and finding ways to develop your natural skills and abilities. We look at healthy ways to integrate your bleeding disorder with your identity and hear from others who have used their skills in creative, fulfilling ways. Your bleeding disorder is only one part of who you are. Learn how to develop your whole person and tap into your many talents. | | MP3 | | $10.00 | | $10.00 | |
