NHF12-217

What Do You Want to Be When You Grow Up? College and Career Choices

Speakers: Don Molter, MEd.

Do you want to be a doctor, lawyer, artist or professional athlete when you grow up? Let us tell you how. Hear a discussion on planning for your future, resources that are available, and how to advocate for yourself and take personal responsibility. We focus on scholarship opportunities and grants, the importance of career and personal inventories, the importance of class selection and performance, and hear success stories from our panelists. Learn how to use Internet and college search engines, the importance of the Free Application for Federal Student Aid (FAFSA) and the role that vocational rehab can play.

MP3

$10.00

$10.00

NHF12-105

Weighty Matters: Overweight with a Bleeding Disorder? Why It Matters and What We Can Do About It

Speakers: Ruth Mulvany, DPT, MS, PT

This session reviews current research on prevalence and impact of overweight conditions in patients with bleeding disorders. We analyze the biomechanical stress of weight loading on joints and multiple body systems, and will review how being overweight adversely affects people with bleeding disorders even more than the average population. Examples of calculations for biomechanical stress are given. Research on weight-loss strategies will be reviewed and participants will develop at least one strategy for counseling/patient education, safe exercise for fitness, wellness and weight loss, motivation and promotion of self-management.

MP3

$10.00

$10.00

NHF12-215

When a Band-Aid and a Hug Are Not Enough! Pain Management and Alternative Therapies

Speakers: Angela Lambing, MSN, NP-C

This session reviews hemophilia pain and how it may be perceived. We look at data from the National Pain Study and discuss non-pharmacological approaches to pain management with an emphasis on collaborating with your hemophilia treatment center for optimal pain management options. We learn to recognize the many different types of hemophilia pain and understand how different non-pharmacological strategies can assist in pain management. In addition, we identify how teens may differ in their expression of pain.

MP3

$10.00

$10.00

NHF12-222

Camp Nursing: Heigh-Ho, Heigh-Ho, It’s Off to Camp We Go

Speakers: Jennifer Meldau, MSRN, CPNP; Madeline Cantini, BSN, RN, CCRC; Jim Munn, RN, MS; Moderator: Ellen White, RN, MSN

This session focuses on the role of the HTC nurse in the camp setting. After a brief discussion of the history and types of camps offered for those with bleeding disorders, the speakers focus on the following: health center guidelines developed for camps serving those with bleeding disorders; ways to address campers' other co-morbidities besides their bleeding diatheses; and the benefits to both the HTC nurse and the camper in this type of setting. We also discuss the importance of self-infusion teaching and ways to accomplish this at camp, the importance of teaching within the camp setting, how other health-related topics that support the care of children with bleeding disorders can be incorporated at camp, and ways to make the learning experience fun.

MP3

$10.00

$10.00

NHF12-124

Please Tell Me Who You Are: Identifying Different Roles in the Hospital Setting

Speakers: Kristen Jaworski, RN, BSN, CCRC

In this session, we focus on the variety of healthcare providers families with a bleeding disorder will encounter and give effective methods on how to best communicate with them. We define “need to know” information and role play an exercise on how to effectively advocate for your care when dealing with different providers. Leave the session with a list of phrases that will aid in conversations with healthcare providers and a basic template of “need to know” information. Best of all, you will have increased confidence in working with your healthcare team.

MP3

$10.00

$10.00

Subtotal

$50.00