NHF12-103

Global Blood Safety, Optimizing Treatment and the Affordability of Care

Speakers: Brian O’Mahony, Mark W. Skinner

Over the next few years, we will see a revolution in treatment not seen since the 1960s. Treatment products will advance on all fronts, from viral-inactivated (solvent detergent) cryoprecipitate, biosimilars of current therapies and treatment products with substantially enhanced efficacy to the increasing likelihood that through gene transfer a “cure” may become a reality. The blood safety concerns of the past have been replaced by current concerns about maintaining vigilance against such blood-borne agents as viruses and prions. Equally important are the challenges of adequate factor supply and access to products around the world. This session describes how patients have started to join forces to bring all key stakeholders together to ensure that the views of product users are considered when it comes to access to these vital therapies. During this session we also address the challenges of answering US government and payer demands for evidence-based medicine, and cost justification for the introduction of new therapies and enhancement of current treatments.

MP3

$10.00

$10.00

NHF12-108

Helping Parents Manage Difficult Behaviors in Children with Hemophilia

Speakers: Nathan J. Blum, MD; Moderator: Eric Iglewski, LMSW

This session helps clinicians to counsel parents whose chronically ill children are exhibiting difficult behaviors. Factors that contribute to difficult behaviors will be reviewed. The importance of helping parents identify priorities for behavior change is emphasized and strategies for counseling parents to help their children increase desired behaviors are described.

MP3

$10.00

$10.00

NHF12-118

Sharing & Caring: Case Studies on VWD

Speakers: Betsy Koval, RN, BSN; Laura-Jean Siggens, RN, MSN, CPN; Angela Lambing, RN, NP; Claudia Lupia, RN, BS, OCN; Kerry Hansen, RN; Charmaine Biega, RN; Moderator: Mary Lou Cygan, MSN, RN, CPNP

During this session we focus on von Willebrand Disease care for a variety of patients seen at the HTC. We address approaches that have been successful in dealing with diverse patient populations and look at unique scenarios.

MP3

$20.00

$20.00

NHF12-110

Head, Shoulders, Knees & Toes: Pros and Cons of Protective Devices

Speakers: Kristen Jaworski, RN, BSN, CCRC

In this session, we discuss safety equipment for daily activities for children with bleeding disorders and the ability of safety measures to ultimately prevent bleeding episodes. We focus on the pros and cons of protective equipment and how to make the best decisions for your family using MedicAlert® guidelines. How important is MedicAlert identification? What is the best safety plan for your child? Can bleeds be prevented? Listen and find out!

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-122

Beyond the Label: Carriers and Women with Mild Hemophilia

Speakers: Joanna A. Davis, MD; Lynne Szott, RN, CCM; Moderator: Danielle Schwager

For female carriers, dropping the term “symptomatic carrier” and picking up the label “mild hemophilia” can be more complicated than it seems. Listen to a panel discussion about the benefits and challenges of labels. Topics include implications of labels and diagnosis in terms of insurance, medical care and self-identity.

MP3

$10.00

$10.00

Subtotal

$62.00