| | | NHF12-211 | | The Glass is Half Full: Reframing Emotional Challenges for Women with Bleeding Disorders Speakers: Danielle Nance, MD; Barbara Forss; Moderator: Patrice Thomas, MS, MSW Many women with bleeding disorders have experienced the frustration of missed diagnosis, the physical and emotional pain of untreated bleeding conditions, and the embarrassment of disclosing personal information in order to explain why they are not feeling well. For some women, there is also guilt associated with passing a genetic condition on to their children. This session provides a time for women to reflect on their feelings about their lived experiences with bleeding disorders or those of their loved ones, and learn about various techniques for coping. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-122 | | Beyond the Label: Carriers and Women with Mild Hemophilia Speakers: Joanna A. Davis, MD; Lynne Szott, RN, CCM; Moderator: Danielle Schwager For female carriers, dropping the term “symptomatic carrier” and picking up the label “mild hemophilia” can be more complicated than it seems. Listen to a panel discussion about the benefits and challenges of labels. Topics include implications of labels and diagnosis in terms of insurance, medical care and self-identity. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
