NHF12-210

Been There, Done That! Raising Parents When you Have a Bleeding Disorder

Speakers: Michele Cecil; Brent Movitz; Jozef Zwier; Moderators: Jennifer Maahs, MSN, PNP; Tonya Hegwood, MSW, LCSW

A panel of young adults with bleeding disorders share childhood experiences of their parents’ adjustment to their diagnosis. We discuss the challenges a bleeding disorder can present, as well as the growth that can occur in both parents and children as a result. This conversation for all will reassure new families that life with a bleeding disorder need not be as frightening as the initial diagnosis.

MP3

$10.00

$10.00

NHF12-012

NYLI: Who Are We? What Do We Do?

Speakers: Samantha Jankins; Alexandra Johnson; Sean Jeffrey

The National Youth Leadership Institute (NYLI) is a leadership training program for a diverse group of young women and men affected by bleeding and clotting disorders, ages 18-25. NYLI was created in 2004 to foster the development of leaders and help NHF chapters/associations across the country build strong youth programs. During this session you have the opportunity to meet a few members from NYLI. Learn about different projects they have been involved in over the past year and the application process. Members will highlight their experiences at NHF events, including Washington Days, Youth Fit, and serving as representatives on the NHF Board of Directors, Diversity Outreach Working Group, Steps for Living Task Force, and Annual Meeting Planning Committee.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-127

Sugar and Spice and Not Everything Nice: Complementary and Alternative Medications

Speakers: Miguel A. Escobar, MD; Moderator: Susan Hunter, RN, BSN

During this session the audience learns about complementary and alternative medicine (CAM), including the most common CAM practices in the USA and their costs. Learn about the effects and mechanism of action of the most popular herbs and how they can affect individuals with bleeding disorders. The role of healthcare providers and CAM is also discussed.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-118

Sharing & Caring: Case Studies on VWD

Speakers: Betsy Koval, RN, BSN; Laura-Jean Siggens, RN, MSN, CPN; Angela Lambing, RN, NP; Claudia Lupia, RN, BS, OCN; Kerry Hansen, RN; Charmaine Biega, RN; Moderator: Mary Lou Cygan, MSN, RN, CPNP

During this session we focus on von Willebrand Disease care for a variety of patients seen at the HTC. We address approaches that have been successful in dealing with diverse patient populations and look at unique scenarios.

MP3

$20.00

$20.00

Subtotal

$54.00