NHF12-009

Ask the Experts: Hormone Therapy Across Women’s Lifespan

Speakers: Lisa Perriera, MD, MPH; Beth McDonald, RN; Moderator: Danielle Schwager

From birth control pills to estrogen replacement therapy, girls and women with bleeding disorders are often prescribed hormone therapy to address their bleeding issues. A panel of healthcare providers explain all available therapies and respond to audience questions. We discuss puberty and hormone therapy/birth control, talking to your daughters about puberty and hormone therapy, and perimenopause and menopause replacement therapy. Learn about the variety of hormone therapies and their pros and cons, and suggestions for developing a plan for your daughter with a bleeding disorder in preparation for puberty.

MP3

$10.00

$10.00

NHF12-105

Weighty Matters: Overweight with a Bleeding Disorder? Why It Matters and What We Can Do About It

Speakers: Ruth Mulvany, DPT, MS, PT

This session reviews current research on prevalence and impact of overweight conditions in patients with bleeding disorders. We analyze the biomechanical stress of weight loading on joints and multiple body systems, and will review how being overweight adversely affects people with bleeding disorders even more than the average population. Examples of calculations for biomechanical stress are given. Research on weight-loss strategies will be reviewed and participants will develop at least one strategy for counseling/patient education, safe exercise for fitness, wellness and weight loss, motivation and promotion of self-management.

MP3

$10.00

$10.00

NHF12-106

Dual Diagnosis: Working with Patients with Hemophilia and Mental Illness

Speakers: Walter E. Kisthardt, PhD, MSW; Moderator: Michael J. Lammer, LISW

Dr. Kisthardt draws upon his research with treatment providers in 42 states relating to effective interventions with participants who struggle with dual or multiple diagnoses. This workshop is informative and interactive. The four essential components of the approach – Engagement, Strengths Assessment, Personal Wellness/Recovery Planning and Group Supervision – are explored.

MP3

$20.00

$20.00

NHF12-210

Been There, Done That! Raising Parents When you Have a Bleeding Disorder

Speakers: Michele Cecil; Brent Movitz; Jozef Zwier; Moderators: Jennifer Maahs, MSN, PNP; Tonya Hegwood, MSW, LCSW

A panel of young adults with bleeding disorders share childhood experiences of their parents’ adjustment to their diagnosis. We discuss the challenges a bleeding disorder can present, as well as the growth that can occur in both parents and children as a result. This conversation for all will reassure new families that life with a bleeding disorder need not be as frightening as the initial diagnosis.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-001

Inspiration, Imagination & Motivation

Speakers: Cindy Ping, BSN; Regina Butler, RN; Moderator: Judy Kauffman, RN, CPNP

How well do patients follow our treatment advice? Learn about the state of adherence, and a method to help motivate patients to change behavior. Motivational interviewing helps the health care provider lead patients to discover their impetus for change. Learn the science behind the motivational interviewing movement.

MP3

$20.00

$20.00

NHF12-112

Nurse Luncheon - Be Our Guest

Speakers: Mary Lou Cygan, MSN, RN, CPNP; Val D. Bias; Jim Munn, RN, MS; Moderator: Susan Hunter, RN, BSN

Listen as we reflect on our roles as HTC nurses and celebrate our achievements. Speakers include Val D. Bias, CEO of NHF, and Jim Munn, Vice Chair of WFH. Special recognitions and presentations will include, but are not limited to, the 2012 NHF Nurse of the Year and the recipient of the 2011-2012 NHF Nursing Excellence Fellowship

Audio CDs: 1

Audio CD

$12.00

$12.00

Subtotal

$84.00