NHF12-010

Ask the Expert: Inhibitors

Speakers: Charles Nakar, MD

Issues covered in this session include inhibitor management, immune tolerance induction therapy and eradication of inhibitors. We discuss the latest research findings on immune tolerance induction therapy, patients using rituximab for high-titer inhibitors, and hemophilia A and B patients with high and low titers. Sponsored by Novo Nordisk

MP3

$10.00

$10.00

NHF12-127

Sugar and Spice and Not Everything Nice: Complementary and Alternative Medications

Speakers: Miguel A. Escobar, MD; Moderator: Susan Hunter, RN, BSN

During this session the audience learns about complementary and alternative medicine (CAM), including the most common CAM practices in the USA and their costs. Learn about the effects and mechanism of action of the most popular herbs and how they can affect individuals with bleeding disorders. The role of healthcare providers and CAM is also discussed.

MP3

$10.00

$10.00

NHF12-122

Beyond the Label: Carriers and Women with Mild Hemophilia

Speakers: Joanna A. Davis, MD; Lynne Szott, RN, CCM; Moderator: Danielle Schwager

For female carriers, dropping the term “symptomatic carrier” and picking up the label “mild hemophilia” can be more complicated than it seems. Listen to a panel discussion about the benefits and challenges of labels. Topics include implications of labels and diagnosis in terms of insurance, medical care and self-identity.

MP3

$10.00

$10.00

NHF12-012

NYLI: Who Are We? What Do We Do?

Speakers: Samantha Jankins; Alexandra Johnson; Sean Jeffrey

The National Youth Leadership Institute (NYLI) is a leadership training program for a diverse group of young women and men affected by bleeding and clotting disorders, ages 18-25. NYLI was created in 2004 to foster the development of leaders and help NHF chapters/associations across the country build strong youth programs. During this session you have the opportunity to meet a few members from NYLI. Learn about different projects they have been involved in over the past year and the application process. Members will highlight their experiences at NHF events, including Washington Days, Youth Fit, and serving as representatives on the NHF Board of Directors, Diversity Outreach Working Group, Steps for Living Task Force, and Annual Meeting Planning Committee.

MP3

$10.00

$10.00

NHF12-111

Es Un Asunto de Familia: Trabajando Juntos para crear un Ambiente Positivo de Familia

Speakers: Dave Robinson, PhD; Guillermo Campillo; Moderator: Marisela Trujillo, LMSW

En esta sesión, nos concentraremos en cómo la cultura afecta a las familias con una enfermedad crónica y cómo superar el estigma de un trastorno de hemorrágico para que no afecte a su hijo. Discutir cómo las parejas pueden trabajar juntos como un equipo y involucrar a la familia extendida como ayudantes. Al final de la sesión aprenderá técnicas sobre cómo trabajar más eficazmente juntos como una familia para hacer frente a los estresores de un trastorno de sangrado.

MP3

$10.00

$10.00

Subtotal

$50.00