NHF12-115

Aging & Hemophilia: Embracing Your Inner Geezer

This session focuses on health issues that affect older hemophilia patients and the evolving nature of comprehensive care. We discuss cardiovascular disease; rheumatological diseases such as gout, arthritis and bone disease; cancer screenings; and orthopedic referrals. Learn the symptoms of age-associated health conditions and how you can coordinate with your HTC and other providers to get the resources you need.

MP3

$10.00

$10.00

NHF12-216

Unexpected Highs: A New World in Street Drugs

Speakers: Paula Lipton, LCSW; Lance Rice; Moderator: Colleen Joiner, LMSW

This session focuses on education and information about illicit and “street” drugs that are commonly abused. We discuss the different names, types and components of “street” drugs and illicit drugs. Drug side effects and possible symptoms or warning signs of abuse are elaborated on. Learn about how common household items and normally prescribed drugs are being abused by both youth and adults today.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-222

Camp Nursing: Heigh-Ho, Heigh-Ho, It’s Off to Camp We Go

Speakers: Jennifer Meldau, MSRN, CPNP; Madeline Cantini, BSN, RN, CCRC; Jim Munn, RN, MS; Moderator: Ellen White, RN, MSN

This session focuses on the role of the HTC nurse in the camp setting. After a brief discussion of the history and types of camps offered for those with bleeding disorders, the speakers focus on the following: health center guidelines developed for camps serving those with bleeding disorders; ways to address campers' other co-morbidities besides their bleeding diatheses; and the benefits to both the HTC nurse and the camper in this type of setting. We also discuss the importance of self-infusion teaching and ways to accomplish this at camp, the importance of teaching within the camp setting, how other health-related topics that support the care of children with bleeding disorders can be incorporated at camp, and ways to make the learning experience fun.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-213

Mirror, Mirror on the Wall: What Is a Carrier After All? Caring for Carrier

Speakers: Jody L. Kujovich, MD; Joann Deutsche, FNP-BC; Moderator: Kim Schafer, RN, BSN

This session reviews how FVIII and FIX carriers are identified, and explores the latest information on related bleeding manifestations. The importance of identifying and managing anemia related to blood loss will be included. Additionally, the effects of aging and related factors on FVIII levels, including the importance of FVIII’s role in thrombosis, is presented.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-211

The Glass is Half Full: Reframing Emotional Challenges for Women with Bleeding Disorders

Speakers: Danielle Nance, MD; Barbara Forss; Moderator: Patrice Thomas, MS, MSW

Many women with bleeding disorders have experienced the frustration of missed diagnosis, the physical and emotional pain of untreated bleeding conditions, and the embarrassment of disclosing personal information in order to explain why they are not feeling well. For some women, there is also guilt associated with passing a genetic condition on to their children. This session provides a time for women to reflect on their feelings about their lived experiences with bleeding disorders or those of their loved ones, and learn about various techniques for coping.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-101

Plenary on Inhibitors

Speakers: Chris Guelcher, MS, RNCS, PNP

Audio CDs: 2

Audio CD

$24.00

$24.00

NHF12-111

Es Un Asunto de Familia: Trabajando Juntos para crear un Ambiente Positivo de Familia

Speakers: Dave Robinson, PhD; Guillermo Campillo; Moderator: Marisela Trujillo, LMSW

En esta sesión, nos concentraremos en cómo la cultura afecta a las familias con una enfermedad crónica y cómo superar el estigma de un trastorno de hemorrágico para que no afecte a su hijo. Discutir cómo las parejas pueden trabajar juntos como un equipo y involucrar a la familia extendida como ayudantes. Al final de la sesión aprenderá técnicas sobre cómo trabajar más eficazmente juntos como una familia para hacer frente a los estresores de un trastorno de sangrado.

Audio CDs: 1

Audio CD

$12.00

$12.00

Subtotal

$94.00