NHF12-100

Opening Session

Speakers: Val D. Bias, NHF CEO

Technology has made it possible to genotype, or determine genetic mutations, for people with hemophilia A or B. Find out about NHF's genotyping initiative that is set to launch in 2013. Find out where NHF and its chapter network are headed, and how you can be a part of something bigger than yourself.

MP3

$10.00

$10.00

NHF12-126

Mechanics of Physical Intimacy: Managing Pain & Joint Limitations in Sexual Relationships

Speakers: Alice Anderson, PT, DPT, PCS

In this session we focus on the biomechanics of sexual activity for individuals with chronic pain and/or limitations in joint function due to bleeding disorders. We discuss possible expansion of one’s view of sexuality, principles of positioning to promote intimacy and comfort, and pros and cons of common positions assumed during physical intimacy. We list options for intimate exploration, describe three principles of optimal positioning and at least two methods of modifying posture to increase comfort while participating in intimate activity, and describe potential benefits and drawbacks to common positions assumed during intimate interaction.

MP3

$10.00

$10.00

NHF12-127

Sugar and Spice and Not Everything Nice: Complementary and Alternative Medications

Speakers: Miguel A. Escobar, MD; Moderator: Susan Hunter, RN, BSN

During this session the audience learns about complementary and alternative medicine (CAM), including the most common CAM practices in the USA and their costs. Learn about the effects and mechanism of action of the most popular herbs and how they can affect individuals with bleeding disorders. The role of healthcare providers and CAM is also discussed.

MP3

$10.00

$10.00

NHF12-006

Piercing, Tattoos & Gages, Oh My!: Pros and Cons of Body Art

Speakers: Jennifer Maahs, PNP; Tonya Hegwood, LCSW

Piercings, tattoos and gages are often seen as a means of self-expression by many adolescents and young adults, even those with a bleeding disorder. While having a bleeding disorder doesn’t prevent a person from obtaining piercings, tattoos or gages, it does add to the list of considerations to be made prior to making a decision about body art. During this session we focus on safety concerns and precautions, and how peer pressure is related. We learn how to address psychosocial issues common in the adolescent/young adult age group and intervention techniques.

MP3

$10.00

$10.00

NHF12-117

Do I Have to Be on the Team? Benefits and Challenges of Sports Participation

Speakers: Jeffrey Kallberg, PT

This session is geared toward families of children with bleeding disorders and teens who have either chosen to participate in sports or who have chosen a different interest, such as music or art. We discuss the physical pros and cons of sports and the psychological pros and cons of belonging to a team, including choosing not to participate.

MP3

$10.00

$10.00

NHF12-107

Management of Sports Participation

Speakers: Cindy Bailey, PT, DPT, OCS, SCS; Sherry Herman-Hilker, PT, MS; Janice Kuhn, RN, MPH; Steven Pipe, MD; Moderator: Christine Rowell, MSPT

This session provides a general overview of teenagers’ physical attributes, changes and challenges in sports training and participation. Hear about the need for communication between parent, coach and athlete for frequency and intensity of workouts. Be educated on the need for incremental and stair step training. This session also provides education on the complications rapid teenage growth spurts add to the joint control and strength. This session also hosts an open forum discussion related to the clinical decision-making process of healthcare professionals regarding participation in physical activity and sports. Challenges faced in this process including economic and financial considerations and quality of life will be included. It will identify and explore questions and areas of concern and raise awareness of important factors to consider beyond the more apparent physical risks and benefits when advising patients about sport participation, and discuss and document concerns faced by healthcare providers for further exploration.

Audio CDs: 1

Audio CD

$12.00

$12.00

Subtotal

$62.00