| | | NHF12-202 | | Steps for Living Speakers: Ayana Woods, MPH; Chad Feay: Christie VanHorne, M.Ed, MPH Learn about Steps for Living, NHF’s newest educational program! The Steps for Living website is a great resource for information on bleeding disorders for kids, adolescents, adults and health educators to promote healthy living for the whole family. It’s a practical tool kit to help families deal with the daily challenges of living with a bleeding disorder and make healthy decisions throughout all life stages. Steps for Living is composed of four sections: First Step, ages 0-8; Next Step, ages 9-15; Step Up, ages 16-25; and Step Out - a new section for adults 26 and up. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-104 | | Your Family, Our Future: Understanding the Role of Genetic Testing in Hemophilia Speakers: Marion Koerper, MD; Diane Aschman MS; Barbara Konkle, MD; Moderators: Glenn Pierce, MD, PhD, Chief Medical Officer, Biogen Idec Hemophilia This session introduceS an innovative partnership of the National Hemophilia Foundation (NHF), American Thrombosis and Hemostasis Network (ATHN), Puget Sound Blood Center (PSBC) and Biogen Idec Hemophilia, which offers free or low cost genetic testing and analysis to patients and members of families with hemophilia while advancing scientific research of genetics and hemophilia. The founding partners and other representatives of the community participate in an interactive panel discussion, provide an overview of genetic testing and its value, as well as present details about the new program and how it can benefit patients, carriers, and their families now and for generations to come. | | MP3 | | $10.00 | | $10.00 | |
