| | | NHF12-100 | | Opening Session Speakers: Val D. Bias, NHF CEO Technology has made it possible to genotype, or determine genetic mutations, for people with hemophilia A or B. Find out about NHF's genotyping initiative that is set to launch in 2013. Find out where NHF and its chapter network are headed, and how you can be a part of something bigger than yourself. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-102 | | I Don’t Need a Support Group, I have Facebook! Pros & Cons of a Social Media Support System Speakers: Edward Kuebler, LCSW; Sonji Wilkes; Tom Joseph; January W. Payne; Christie VanHorne, MEd, MPH Social media offers the opportunity to “meet” others with your rare disease, to relay experiences and search for answers for those difficult questions. The potential is endless! But how much is too much? The collection of personal data is a real danger. While it is important to decipher inaccurate information from unverifiable sources, social media is the reality of our time. We discuss the role social media plays in the bleeding disorders community, the importance of privacy and the benefits of being online. Audio CDs: 1 | | Audio CD | | $12.00 | | $12.00 | |
| | | NHF12-121 | | Insurance and Advocacy Speakers: Johanna Gray, MPA; Ellen Riker; Michelle Rice NHF’s DC consultants provide an update on the political climate post election, its potential impact on health reform implementation and what it means to you as a consumer. Learn how to use the Personal Health Insurance Toolkit to assist you in evaluating your health plan options. Audio CDs: 2 | | Audio CD | | $24.00 | | $24.00 | |
