NHF12-107

Management of Sports Participation

Speakers: Cindy Bailey, PT, DPT, OCS, SCS; Sherry Herman-Hilker, PT, MS; Janice Kuhn, RN, MPH; Steven Pipe, MD; Moderator: Christine Rowell, MSPT

This session provides a general overview of teenagers’ physical attributes, changes and challenges in sports training and participation. Hear about the need for communication between parent, coach and athlete for frequency and intensity of workouts. Be educated on the need for incremental and stair step training. This session also provides education on the complications rapid teenage growth spurts add to the joint control and strength. This session also hosts an open forum discussion related to the clinical decision-making process of healthcare professionals regarding participation in physical activity and sports. Challenges faced in this process including economic and financial considerations and quality of life will be included. It will identify and explore questions and areas of concern and raise awareness of important factors to consider beyond the more apparent physical risks and benefits when advising patients about sport participation, and discuss and document concerns faced by healthcare providers for further exploration.

MP3

$10.00

$10.00

NHF12-223

Medical Marijuana: What’s It All About?

Speakers: Michelle Witkop, DNP, FNP-BC

During this session we discuss the evolution of marijuana as a medical strategy for symptom management. We review the history of medical marijuana, look at the challenges and barriers in using it for medical purposes, and discuss its effects on the body.

MP3

$10.00

$10.00

NPSG12-165

Local Land Use Planning and State Trust Land Management in the West

Speakers: C.J. Gabbe, Project Manager, Fregonese Associates; Tobin Follenweider, Deputy Director, Colorado State Board of Land Commissioners; Sandie Smith, President & CEO, Pinal Partnership; Moderator: Susan Culp, Project Manager, Western Lands and Communities, Sonoran Institute

This session will provide a basic overview and history of state trust lands in the West, a unique and often misunderstood category of lands, and provide planning officials with a better understanding of the management mandate for these lands, constraints and challenges, and opportunities presented by planning and developing on state trust lands within communities. Planners will learn how to effectively engage with trust land managers to improve coordination of planning activities, and ultimately, to advance better land use outcomes and sustainability through strategic development of trust lands within urban areas.

MP3

$10.00

$10.00

NHF12-100

Opening Session

Speakers: Val D. Bias, NHF CEO

Technology has made it possible to genotype, or determine genetic mutations, for people with hemophilia A or B. Find out about NHF's genotyping initiative that is set to launch in 2013. Find out where NHF and its chapter network are headed, and how you can be a part of something bigger than yourself.

MP3

$10.00

$10.00

NHF12-217

What Do You Want to Be When You Grow Up? College and Career Choices

Speakers: Don Molter, MEd.

Do you want to be a doctor, lawyer, artist or professional athlete when you grow up? Let us tell you how. Hear a discussion on planning for your future, resources that are available, and how to advocate for yourself and take personal responsibility. We focus on scholarship opportunities and grants, the importance of career and personal inventories, the importance of class selection and performance, and hear success stories from our panelists. Learn how to use Internet and college search engines, the importance of the Free Application for Federal Student Aid (FAFSA) and the role that vocational rehab can play.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-102

I Don’t Need a Support Group, I have Facebook! Pros & Cons of a Social Media Support System

Speakers: Edward Kuebler, LCSW; Sonji Wilkes; Tom Joseph; January W. Payne; Christie VanHorne, MEd, MPH

Social media offers the opportunity to “meet” others with your rare disease, to relay experiences and search for answers for those difficult questions. The potential is endless! But how much is too much? The collection of personal data is a real danger. While it is important to decipher inaccurate information from unverifiable sources, social media is the reality of our time. We discuss the role social media plays in the bleeding disorders community, the importance of privacy and the benefits of being online.

MP3

$10.00

$10.00

NHF12-105

Weighty Matters: Overweight with a Bleeding Disorder? Why It Matters and What We Can Do About It

Speakers: Ruth Mulvany, DPT, MS, PT

This session reviews current research on prevalence and impact of overweight conditions in patients with bleeding disorders. We analyze the biomechanical stress of weight loading on joints and multiple body systems, and will review how being overweight adversely affects people with bleeding disorders even more than the average population. Examples of calculations for biomechanical stress are given. Research on weight-loss strategies will be reviewed and participants will develop at least one strategy for counseling/patient education, safe exercise for fitness, wellness and weight loss, motivation and promotion of self-management.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-219

Creative SW Programming

Speakers: Peg Geary, MA, MBA, MPH, LCSW, CCM; Elissa Kraus, MS, CGC; Don Molter, MEd; David Rushlow, LMSW; Moderators: Peg Geary, MA, MBA, MPH, LCSW, CCM

Understanding Hemophilia Genetics: How Can We Help? Social Workers are given an introduction to basic hemophilia genetics, including pattern of inheritance, risk determination, and molecular testing and analysis. Using case scenarios we discuss the implications of DNA testing on the patient and family, and the complex ethical issues surrounding the disclosure of results. We explore the psychosocial dynamics of the burden and consequences of genetic knowledge. Participants identify and explore ways to assist patients and families cope with the all-too-common reactions of guilt, shame and blame —— Career Counseling for Adolescence: During this session we focus on the role and importance of career counselors within the bleeding disorder community. We discuss advocacy skills for parents and students, the differences between Healthcare Plans, IEPs and Section 504 plans and when each plan should be appropriately used. Learn about the importance of early career testing, scholarship searches, and school/community involvement activities. —— Utilizing Telemedicine in Rural Communities: This session focuses on implementing a telemedicine program at your HTC. We discuss funding, the protocols and technology necessary to run such a program. Learn how this innovative technology can improve access to healthcare and quality of care for the rural patient population. You also learn how to assess client readiness and delivery of social work intervention techniques using telemedicine as a therapy tool.

Audio CDs: 2

Audio CD

$24.00

$24.00

NHF12-101

Plenary on Inhibitors

Speakers: Chris Guelcher, MS, RNCS, PNP

MP3

$20.00

$20.00

NHF12-006

Piercing, Tattoos & Gages, Oh My!: Pros and Cons of Body Art

Speakers: Jennifer Maahs, PNP; Tonya Hegwood, LCSW

Piercings, tattoos and gages are often seen as a means of self-expression by many adolescents and young adults, even those with a bleeding disorder. While having a bleeding disorder doesn’t prevent a person from obtaining piercings, tattoos or gages, it does add to the list of considerations to be made prior to making a decision about body art. During this session we focus on safety concerns and precautions, and how peer pressure is related. We learn how to address psychosocial issues common in the adolescent/young adult age group and intervention techniques.

MP3

$10.00

$10.00

Subtotal

$128.00