NHF12-000

Full Set Audio

Each session on a separate CD (includes free binders); or all sessions in mp3 format on free USB (playable on any computer, iPod, IPad or other listening electronic device. CDs and USBs delivered via Priority US Mail. 15% shipping and handling fees will be applied upon checkout.

Audio CDs: 73

Audio CD

$495.00

$495.00

NHF12-125

I’m More than Just a Caregiver

Speakers: Diane Standish, LSW; Robin Bratton Bias; Devi Tejiram; Dawn Rotellini

As a caregiver, do you ever experience burnout or loss of identity? During this session we focus on caregiver identity, how relationships are affected by the caregiver and the importance of maintaining balance in multiple roles. We look at research findings about caregiver identity and hear anecdotal experiences from our panelists. You learn ways to monitor caregiver burnout, and get suggestions and tips on maintaining balance and nourishing healthy relationships.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-209

Addressing Therapeutic Gaps in Rare Bleeding Disorders

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-007

Liver Disease Interventions and Hepatitis C Updates

This session focuses on stage 4 liver disease (cirrhosis), coordinating liver care with your hemophilia treatment center and the status of new drugs for hepatitis C. We discuss management of complications of cirrhosis, evaluation of orthotopic liver transplantation in a patient with hemophilia and late-breaking hepatitis C therapies. Learn how you can be your own self-advocate when it comes to care, and what is in the pipeline for the future.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-107

Management of Sports Participation

Speakers: Cindy Bailey, PT, DPT, OCS, SCS; Sherry Herman-Hilker, PT, MS; Janice Kuhn, RN, MPH; Steven Pipe, MD; Moderator: Christine Rowell, MSPT

This session provides a general overview of teenagers’ physical attributes, changes and challenges in sports training and participation. Hear about the need for communication between parent, coach and athlete for frequency and intensity of workouts. Be educated on the need for incremental and stair step training. This session also provides education on the complications rapid teenage growth spurts add to the joint control and strength. This session also hosts an open forum discussion related to the clinical decision-making process of healthcare professionals regarding participation in physical activity and sports. Challenges faced in this process including economic and financial considerations and quality of life will be included. It will identify and explore questions and areas of concern and raise awareness of important factors to consider beyond the more apparent physical risks and benefits when advising patients about sport participation, and discuss and document concerns faced by healthcare providers for further exploration.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-102

I Don’t Need a Support Group, I have Facebook! Pros & Cons of a Social Media Support System

Speakers: Edward Kuebler, LCSW; Sonji Wilkes; Tom Joseph; January W. Payne; Christie VanHorne, MEd, MPH

Social media offers the opportunity to “meet” others with your rare disease, to relay experiences and search for answers for those difficult questions. The potential is endless! But how much is too much? The collection of personal data is a real danger. While it is important to decipher inaccurate information from unverifiable sources, social media is the reality of our time. We discuss the role social media plays in the bleeding disorders community, the importance of privacy and the benefits of being online.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-223

Medical Marijuana: What’s It All About?

Speakers: Michelle Witkop, DNP, FNP-BC

During this session we discuss the evolution of marijuana as a medical strategy for symptom management. We review the history of medical marijuana, look at the challenges and barriers in using it for medical purposes, and discuss its effects on the body.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-006

Piercing, Tattoos & Gages, Oh My!: Pros and Cons of Body Art

Speakers: Jennifer Maahs, PNP; Tonya Hegwood, LCSW

Piercings, tattoos and gages are often seen as a means of self-expression by many adolescents and young adults, even those with a bleeding disorder. While having a bleeding disorder doesn’t prevent a person from obtaining piercings, tattoos or gages, it does add to the list of considerations to be made prior to making a decision about body art. During this session we focus on safety concerns and precautions, and how peer pressure is related. We learn how to address psychosocial issues common in the adolescent/young adult age group and intervention techniques.

Audio CDs: 1

Audio CD

$12.00

$12.00

Subtotal

$579.00