NHF12-010

Ask the Expert: Inhibitors

Speakers: Charles Nakar, MD

Issues covered in this session include inhibitor management, immune tolerance induction therapy and eradication of inhibitors. We discuss the latest research findings on immune tolerance induction therapy, patients using rituximab for high-titer inhibitors, and hemophilia A and B patients with high and low titers. Sponsored by Novo Nordisk

MP3

$10.00

$10.00

NHF12-127

Sugar and Spice and Not Everything Nice: Complementary and Alternative Medications

Speakers: Miguel A. Escobar, MD; Moderator: Susan Hunter, RN, BSN

During this session the audience learns about complementary and alternative medicine (CAM), including the most common CAM practices in the USA and their costs. Learn about the effects and mechanism of action of the most popular herbs and how they can affect individuals with bleeding disorders. The role of healthcare providers and CAM is also discussed.

MP3

$10.00

$10.00

NHF12-122

Beyond the Label: Carriers and Women with Mild Hemophilia

Speakers: Joanna A. Davis, MD; Lynne Szott, RN, CCM; Moderator: Danielle Schwager

For female carriers, dropping the term “symptomatic carrier” and picking up the label “mild hemophilia” can be more complicated than it seems. Listen to a panel discussion about the benefits and challenges of labels. Topics include implications of labels and diagnosis in terms of insurance, medical care and self-identity.

MP3

$10.00

$10.00

NHF12-012

NYLI: Who Are We? What Do We Do?

Speakers: Samantha Jankins; Alexandra Johnson; Sean Jeffrey

The National Youth Leadership Institute (NYLI) is a leadership training program for a diverse group of young women and men affected by bleeding and clotting disorders, ages 18-25. NYLI was created in 2004 to foster the development of leaders and help NHF chapters/associations across the country build strong youth programs. During this session you have the opportunity to meet a few members from NYLI. Learn about different projects they have been involved in over the past year and the application process. Members will highlight their experiences at NHF events, including Washington Days, Youth Fit, and serving as representatives on the NHF Board of Directors, Diversity Outreach Working Group, Steps for Living Task Force, and Annual Meeting Planning Committee.

MP3

$10.00

$10.00

NHF12-111

Es Un Asunto de Familia: Trabajando Juntos para crear un Ambiente Positivo de Familia

Speakers: Dave Robinson, PhD; Guillermo Campillo; Moderator: Marisela Trujillo, LMSW

En esta sesión, nos concentraremos en cómo la cultura afecta a las familias con una enfermedad crónica y cómo superar el estigma de un trastorno de hemorrágico para que no afecte a su hijo. Discutir cómo las parejas pueden trabajar juntos como un equipo y involucrar a la familia extendida como ayudantes. Al final de la sesión aprenderá técnicas sobre cómo trabajar más eficazmente juntos como una familia para hacer frente a los estresores de un trastorno de sangrado.

MP3

$10.00

$10.00

NHF12-002

Ethical Social Work Practice: What Every Social Worker Needs to Know

Speakers: Jacob D. Stone, ACSW; Moderator: Nancy Hatcher, MSW, LCSW

This seminar focuses on developing practical ethical problem-solving skills for social workers who treat patients with bleeding disorders and their families. Hear about important components of ethical competence, the use of the NASW Code of Ethics, The Ethical Principles Screen, and how to apply an algorithm for resolving ethical dilemmas. We will also discuss the ways that personal values, agency values and the values of the profession intersect in ethical discernment. Lastly, we examine and discuss several case studies that present ethical dilemmas relating to bleeding disorders.

MP3

$20.00

$20.00

NHF12-213

Mirror, Mirror on the Wall: What Is a Carrier After All? Caring for Carrier

Speakers: Jody L. Kujovich, MD; Joann Deutsche, FNP-BC; Moderator: Kim Schafer, RN, BSN

This session reviews how FVIII and FIX carriers are identified, and explores the latest information on related bleeding manifestations. The importance of identifying and managing anemia related to blood loss will be included. Additionally, the effects of aging and related factors on FVIII levels, including the importance of FVIII’s role in thrombosis, is presented.

MP3

$10.00

$10.00

NHF12-120

Effective Social Work Strategies for Engaging the African-American Male

Speakers: Waldo E. Johnson Jr., PhD, MSW; Moderator: Debra Honig, MSW, LCSW

This session focuses on the role and importance of historical and contemporary social statuses that shape medical and public health professional individual and institutional practices with African-American males. We explore how these racialized and social class experiences, coupled with American male cultural notions and experiences with public and private social welfare and social service institutions as both patients and clients, frame the context for examining African-American male marginalized engagement and their subsequent distrust/mistrust of the medical and public health professions. In addition, the presentation focuses on how male help-seeking behavior and culture within the disproportionately impoverished African-American community influence engagement with social welfare and social service institutions.

MP3

$20.00

$20.00

NHF12-110

Head, Shoulders, Knees & Toes: Pros and Cons of Protective Devices

Speakers: Kristen Jaworski, RN, BSN, CCRC

In this session, we discuss safety equipment for daily activities for children with bleeding disorders and the ability of safety measures to ultimately prevent bleeding episodes. We focus on the pros and cons of protective equipment and how to make the best decisions for your family using MedicAlert® guidelines. How important is MedicAlert identification? What is the best safety plan for your child? Can bleeds be prevented? Listen and find out!

MP3

$10.00

$10.00

NHF12-005

Hey, What About Me? Raising Siblings in a Family Affected by Chronic Illness

Speakers: Dave Robinson, PhD

Hear about strategies to create a secure family environment, despite living with a chronic illness. Learn how to involve other children as part of the treatment team, how to help children understand their sibling’s bleeding disorder and the importance of spending valuable time with each member of the family. Hear how parents can maintain a healthy connection. Learn the strategies to create an environment where all family members can flourish.

MP3

$10.00

$10.00

Subtotal

$120.00