NHF12-124

Please Tell Me Who You Are: Identifying Different Roles in the Hospital Setting

Speakers: Kristen Jaworski, RN, BSN, CCRC

In this session, we focus on the variety of healthcare providers families with a bleeding disorder will encounter and give effective methods on how to best communicate with them. We define “need to know” information and role play an exercise on how to effectively advocate for your care when dealing with different providers. Leave the session with a list of phrases that will aid in conversations with healthcare providers and a basic template of “need to know” information. Best of all, you will have increased confidence in working with your healthcare team.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-201

Oral Presentations from the Top Research Poster Abstracts

MP3

$10.00

$10.00

NHF12-004

Hemophilia 101

Speakers: Joanna A. Davis, MD

This session focuses on the basics of hemophilia including inheritance, mechanism, symptoms and management. With a thorough overview of the condition, you will have a better understanding of joint bleeds, the rationale for prophylaxis and practical approaches to common issues. Hear from veteran parents, teens and young adults on living with hemophilia.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-008

Preguntas Para Los Expertos En Español

Speakers: Irmel A. Ayala, MD

Únase a nosotros para esta sesión donde analizaremos la definición médica de hemofilia y la enfermedad de von Willebrand, el manejo de los trastornos y un repaso general de los medicamentos y otras terapias para el tratamiento y la prevención de episodios de sangrado. Habrá tiempo suficiente para preguntas y respuestas.

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-203

NHF Ethics Committee: What Can We Do For You?

Audio CDs: 1

Audio CD

$12.00

$12.00

NHF12-106

Dual Diagnosis: Working with Patients with Hemophilia and Mental Illness

Speakers: Walter E. Kisthardt, PhD, MSW; Moderator: Michael J. Lammer, LISW

Dr. Kisthardt draws upon his research with treatment providers in 42 states relating to effective interventions with participants who struggle with dual or multiple diagnoses. This workshop is informative and interactive. The four essential components of the approach – Engagement, Strengths Assessment, Personal Wellness/Recovery Planning and Group Supervision – are explored.

MP3

$20.00

$20.00

NHF12-103

Global Blood Safety, Optimizing Treatment and the Affordability of Care

Speakers: Brian O’Mahony, Mark W. Skinner

Over the next few years, we will see a revolution in treatment not seen since the 1960s. Treatment products will advance on all fronts, from viral-inactivated (solvent detergent) cryoprecipitate, biosimilars of current therapies and treatment products with substantially enhanced efficacy to the increasing likelihood that through gene transfer a “cure” may become a reality. The blood safety concerns of the past have been replaced by current concerns about maintaining vigilance against such blood-borne agents as viruses and prions. Equally important are the challenges of adequate factor supply and access to products around the world. This session describes how patients have started to join forces to bring all key stakeholders together to ensure that the views of product users are considered when it comes to access to these vital therapies. During this session we also address the challenges of answering US government and payer demands for evidence-based medicine, and cost justification for the introduction of new therapies and enhancement of current treatments.

MP3

$10.00

$10.00

NHF12-202

Steps for Living

Speakers: Ayana Woods, MPH; Chad Feay: Christie VanHorne, M.Ed, MPH

Learn about Steps for Living, NHF’s newest educational program! The Steps for Living website is a great resource for information on bleeding disorders for kids, adolescents, adults and health educators to promote healthy living for the whole family. It’s a practical tool kit to help families deal with the daily challenges of living with a bleeding disorder and make healthy decisions throughout all life stages. Steps for Living is composed of four sections: First Step, ages 0-8; Next Step, ages 9-15; Step Up, ages 16-25; and Step Out - a new section for adults 26 and up.

MP3

$10.00

$10.00

NHF12-003

Von Willebrand Disease

Speakers: Cynthia Gauger, MD

Learn about coping with the diagnosis of VWD, management of the disorder and specific challenges it presents during childhood. Includes a brief overview of medication and other therapies for treatment and prevention of bleeding episodes. Learn what to expect during the progression of VWD from infancy through adulthood, the benefits of a team approach to treating physical and psychological aspects, and the services that are available at a hemophilia treatment center (HTC).

MP3

$10.00

$10.00

NHF12-001

Inspiration, Imagination & Motivation

Speakers: Cindy Ping, BSN; Regina Butler, RN; Moderator: Judy Kauffman, RN, CPNP

How well do patients follow our treatment advice? Learn about the state of adherence, and a method to help motivate patients to change behavior. Motivational interviewing helps the health care provider lead patients to discover their impetus for change. Learn the science behind the motivational interviewing movement.

Audio CDs: 2

Audio CD

$24.00

$24.00

Subtotal

$132.00